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New Year, New Business

New Year, New Business

This year my wife and I are fulfilling a long-held dream of starting a real estate redevelopment business (that’s “house flipping” to the casual observer, but it’s so much more than that). If you’re interested we’re here (website), here (Facebook), and here (Twitter). Thanks.

Now, on to the important part of this post.

The Architectural Blogging Community posts around a common theme each month in a blog series called ArchiTalks. This time the theme is “New Year, New _____”.  This month is special because we are also raising funds for a great little man named Matthew who’s been beating the odds and changing lives as long as we’ve known him.

Here is Matthew’s story, as told by his Dad, Rusty (our friend and fellow architect):

Matthew Long was born May 29th, 2013, happy, and seemingly healthy. Less than two days later his mother and I found ourselves in an neonatal intensive care unit waiting room, listening to a rushed intensive care doctor explain how our son needed immediate dialysis to save his life. The disease, he briefly explained, was one of a group of disorders called Urea Cycle Disorders, which impact the way the body breaks down protein. We later discovered that Matthew’s particular variant is called OTC Deficiency, a particularly severe form of it in fact, which results in a rapid rise of ammonia in the blood, called hyperammonemia, resulting in devastating neurological damage. This form of OTC is so severe, Matthew has virtually no peers who have survived it. Once the immediate crisis was arrested, we came to find out more about the disease and the impact of this initial event.

The disease is inherited, and the damage is permanent. Treatment consists of a combination of medications, low protein medical diet, and ultimately a liver transplant. Matthew was fortunate to experience no additional hyperammonemic events in the following fifteen months of life, and had a liver transplant on August 24th, 2014. The cure for the disease, a transplant, isn’t so much a cure as trading one condition for another. While we will never risk the chance of another ammonia spike, Matthew is on a half a dozen or more medications at any given time to avoid rejection. Despite these challenges, intensive daily therapy for cerebral palsy (a result of the initial damage), limited motor function, and various other challenges along the way, our son is remarkably happy and has changed all our lives for the better. He’s taught us to be stronger than we ever thought possible, to have faith beyond human understanding, and the immeasurable value of life. 

The #ArchiTalks community is hoping to raise $5,500 the help Architect Rusty Long and his amazing wife reach their financial goal on HelpHopeLive.org. If each reader of ArchiTalks posts a small amout, our impact will be massive and we can make a difference for Mathews family. Click here now and donate $2.00

After you’ve joined me in donating, please enjoy these other ArchiTalks posts!

Enoch Sears – Business of Architecture (@businessofarch)
New Year, New Community on Business of Architecture

Bob Borson – Life of An Architect (@bobborson)
http://www.lifeofanarchitect.com/new-year-new-adventures-that-might-kill-me/

Matthew Stanfield – FiELD9: architecture (@FiELD9arch)
New Year, New CAD

Marica McKeel – Studio MM (@ArchitectMM)
New Year, New Adventures

Lee Calisti, AIA – Think Architect (@LeeCalisti)
new race new year new start

Mark R. LePage – Entrepreneur Architect (@EntreArchitect)
New Year. New Budget.

Evan Troxel – Archispeak Podcast / TRXL (@etroxel)

Lora Teagarden – L² Design, LLC (@L2DesignLLC)
New Year, New Goals

Nicholas Renard – dig Architecture (@dig-arch)
New Year, A New Hope

Jes Stafford – Modus Operandi Design (@modarchitect)
New Year, New Gear

Cindy Black – Rick & Cindy Black Architects (*)
New Year, New Casita

Eric T. Faulkner – Rock Talk (@wishingrockhome)
New Year, New Underwear

Rosa Sheng – Equity by Design (@EquityxDesign)
New Year, New Era

Michele Grace Hottel – Michele Grace Hottel, Architect (@mghottel)
“new year, new _____”

Meghana Joshi – IRA Consultants, LLC (@MeghanaIRA)
New Year, New Plan

Amy Kalar – ArchiMom (@AmyKalar)
New Year, New Adventures

Michael Riscica – Young Architect (@YoungArchitxPDX)
New Year, New Life!

Stephen Ramos – BUILDINGS ARE COOL (@sramos_BAC)
New Year, New Home

brady ernst – Soapbox Architect (@bradyernstAIA)
New Year, New·ly Adult Architect

Brian Paletz – The Emerging Architect (@bpaletz)
A Little Premature

Eric Wittman – intern[life] (@rico_w)
new year, new [engagement]

Sharon George – Architecture By George (@sharonraigeorge)
New Year, New Business

Brinn Miracle – Architangent (@simplybrinn)
New Year, New Perspective

Emily Grandstaff-Rice – Emily Grandstaff-Rice AIA (@egraia)
The New New

Daniel Beck – The Architect’s Checklist (@archchecklist)

Jarod Hall – di’velept (@divelept)
New Year New Reality

Anthony Richardson – That Architecture Student (@anth_rich)
New Year New Desk

Drew Paul Bell – Drew Paul Bell (@DrewPaulBell)
New Year, New Appreciation

Greg Croft – Sage Leaf Group (@croft_gregory)
New Year, New Goals

Jeffrey A Pelletier – Board & Vellum (@boardandvellum)
New Year New Office

Aaron Bowman – Product & Process (@PP_Podcast)
New Year, More Change

Samantha Raburn – The Aspiring Architect (@TheAspiringArch)

Kyu Young Kim – Palo Alto Design Studio (@sokokyu)
New Year, New Office Space

Jared W. Smith – Architect OWL (@ArchitectOWL)
New Year, New Reflection

Rusty Long – Rusty Long, Architect (@rustylong)
New Year, New Direction

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